DIY SOS star Dylan Myers passes away at age ten after lifelong battle with a stunted growth syndrome


‘Broken forever but always together’: DIY SOS’s ‘real life Peter Pan’ Dylan Myers passes away aged 11 after battling a stunted growth syndrome

  • Dylan passed away on Friday afternoon, after a lifelong battle with the syndrome
  • His condition was unnamed, but left him with the mind and body of a baby despite ageing, alongside a multitude of health conditions

Dylan Meyers passed away on Friday after a lifelong battle with an unnamed syndrome, which stunted his growth and left him with the mind and body of a baby.

The 11-year-old, who appeared on an episode of DIY SOS with his family, was known as ‘the real life peter pan’.

His parents shared a heartfelt tribute to him, announcing his death via their Facebook page for him, named Dylan’s Story.

Heartbreaking: Dylan Myers passes away at age 11 after lifelong battle with a stunted growth syndrome

In the heartbreaking post, they said they were ‘broken forever but always together’. 

The family, who are from Ongar, Essex, had been using the page to give updates on Dylan’s condition, as he was suffering form a multitude of health implications due to the syndrome.

In the post, they shared: ‘It’s with the heaviest broken hearts that we let you know our beautiful brave heroic little Dylan took his last breath in our arms at 14:10 this afternoon.

‘He fought so very hard to the bitter end but physically couldn’t fight anymore.

‘It was Dylan’s story and he wrote every page and enjoyed every minute of his too short little life. His amazing smile and giggle will live on in our hearts forever ♥️ but unfortunately this story has had come to an end.

‘Sleep tight baby boy. Until we meet again. Broken forever but always together’

Alongside the post was a collection of heartbreaking pictures, which included one of his pass to Great Ormond Street Hospital. 

Tragic: His parents shared a heartfelt tribute to him, announcing his death via their Facebook page for him, named Dylan's Story

Tragic: His parents shared a heartfelt tribute to him, announcing his death via their Facebook page for him, named Dylan’s Story

Dylan’s condition was extremely rare and unidentified, leaving him in constant pain all the time as he underwent treatment for a list of health complications.

These included organs which are mirrored on the opposite side of his body, daily apnea attacks (stops breathing), Seizures, Arthritis, Inflammatory Bowel Disease and he the suppressing of his Immune system.

When Dylan was eight, he weighed just 12kg, was 89cm tall and fit into the clothes of a 12-month-old baby – only growing 1 mm per year. 

His parents would often have to have to resuscitate him when he ‘died in their arms’, due to apnea attacks where he didn’t breathe for 30 seconds. 

Dylan was dubbed a ‘miracle baby’ after doctors predicted he would not live past 12 months old. 

Back in 2016, DIY SOS filmed at Great Ormond Street Hospital, where Dylan regularly visited for treatments alongside his mum Danielle, who has campaigned to raise awareness about undiagnosed conditions.

The show joined forces with the Chelsea Flower Show to transport an entire garden from the show to the children’s hospital – lifting it over buildings and rebuilding it on the hospital’s roof.

Dylan was selected to feature in the show alongside two other children – but at the time, Danielle said he ‘didn’t know’ that he was on television, explaining that it was about the memories for her.

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